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Cancer Resources for Learning More

You may want more information for yourself, your family, and your doctor. These services from the National Cancer Institute (NCI) may help you.

Federal Agencies

National Cancer Institute
NCI provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. It also lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database. The following free material may also be helpful. To order, visit NCI's Web site or call NCI's Cancer Information Service (CIS) tollfree.

For a Complete List of Resources
NCI's Web site contains comprehensive information about coping with cancer, cancer causes and prevention, screening and diagnosis, treatment and survivorship; clinical trials; statistics; funding, training, and employment opportunities; and the Institute and its programs.
See the fact sheet, "National Organizations That Offer Services to People With Cancer and Their Families," at www.cancer.gov, search terms "national organizations." Or call 1-800-4-CANCER (1-800-422-6237) to ask for it.

Cancer Information Service (CIS)
CIS answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. It also provides NCI printed materials.

Phone: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
Web site: www.cancer.gov
Chat online: www.cancer.gov/help

Administration on Aging
The Administration on Aging provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.

Phone: 1-202-619-0724
TTY: 1-800-877-8339
Web site: www.aoa.gov

Centers for Medicare & Medicaid Services
The Centers for Medicare & Medicaid Services provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.

Phone: 1-800-MEDICARE (1-800-633-4227)
Web site: www.medicare.gov orwww.cms.hhs.gov (for the free booklet Medicare Basics: A Guide for Caregivers)

Phone: Web site: (for Medicare information)

Equal Employment Opportunity Commission
EEOC provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. It also coordinates investigations of employment discrimination.

Phone: 1-800-669-4000
TTY: 1-800-669-6820
Web site: www.eeoc.gov

National Association of Area Agencies on Aging/Eldercare Locator
The Eldercare Locator is a nationwide directory assistance service designed to help older persons and caregivers find local resources for support. Areas of support include transportation, meals, home care, housing alternatives, legal issues, and social activities.

Phone: 1-800-677-1116
Web site: www.eldercare.gov

U.S. Department of Labor/Office of Disability Employment Policy
The U.S. Department of Labor provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.

Phone: 1-866-ODEP-DOL (1-866-633-7365)
TTY: 1-877-889-5627
Web site: www.dol.gov/odep

Nonprofit Organizations

American Cancer Society/National Cancer Information Center
ACS provides cancer information and support to patients, families, and caregivers. It also supports research, community education, and advocacy and public policy issues.

Phone: 1-800-ACS-2345 (1-800-227-2345)
Web site: www.cancer.org

CancerCare
CancerCare provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs - including counseling, education, financial assistance and practical help - are provided by trained oncology social workers and are free of charge.

Phone: 1-800-813-HOPE (1-800-813-4673)
Web site: www.cancercare.org

Cancer Hope Network
Cancer Hope Network matches patients and families with trained volunteers who have recovered from a similar cancer experience.

Phone: 1-877-HOPENET (1-877-467-3638)
Web site: www.cancerhopenetwork.org

Family Caregiver Alliance
FCA addresses the needs of families and friends who provide long-term care at home.

Phone: 1-800-445-8106
Web site: www.caregiver.org

Gilda's Club, Inc.
Gilda's Club provides social and emotional support for patients, families, and friends.

Phone: 1-888-GILDA-4-U (1-888-445-3248)
Web site: www.caregiver.org

Lance Armstrong Foundation
The Lance Armstrong Foundation seeks to inspire and empower people living with, through, and beyond cancer to live strong. It provides education, advocacy, and public health and research programs.

Phone: 1-512-236-8820 (general number)
1-866-235-7205 (LIVESTRONG SurvivorCare program)
Web site: www.livestrong.org

National Coalition for Cancer Survivorship
NCCS provides information and resources on cancer support, advocacy, and quality-oflife issues to cancer survivors and their loved ones.

Phone: 1-877-NCCS-YES (1-877-622-7937)
Web site: www.canceradvocacy.org

National Family Caregivers Association
NFCA provides information, education, support, public awareness, and advocacy for caregivers.

Phone: 1-800-896-3650
Web site: www.nfcacares.org

NeedyMeds
The NeedyMeds Web site lists medicine assistance programs available from drug companies. NOTE: Usually, patients cannot apply directly to these programs. Ask a doctor, nurse, or social worker to contact NeedyMeds on your behalf.

Web site: www.needymeds.com

Patient Advocate Foundation
PAF provides education, legal counseling, and referrals to cancer patients and survivors. It specializes in matters related to managed care, insurance, financial issues, job discrimination, and debt crisis.

Phone: 1-800-532-5274
Web site: www.patientadvocate.org

The Well Spouse Association
The association provides support to wives, husbands, and partners of chronically ill and/or disabled persons.

Phone: 1-800-838-0879
Web site: www.wellspouse.org

The Wellness Community
The Wellness Community is a national organization that provides support groups, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events.

Phone: 1-888-793-WELL (1-888-793-9355)
Web site: www.wellness-community.org


 

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